Tag Archives: platelets

I haven’t had a woman claw my back like that in a long time!

Personal stuff, ,

More doc visits, more tests. Man, if I’d been willing to go to this much trouble when I was racing, with the intent to improve performance, who knows what I could have accomplished! I could have been the next Lance Armstrong! Not.

Wednesday morning was my first-ever visit with a Dermatologist. Not for checking out rogue moles, but to figure out a way to get rid of the itchy skin rashes I’ve had the past year or so. There was some concern they were either a symptom of my ET (Essential Thrombocythemia, a very mild bone marrow cancer) or the medication used to manage. But after taking some samples off my back (the “clawing” I referred to) and examining them under a microscope, it looks more like a simple skin fungus. Who knew.

Because the drug used to clear this up (Lamisil) can tax the liver a bit, I had not only my usual vial of blood drawn, but another two used to figure out how well my liver is actually working. Good news; the average 3-4 drinks I have/year haven’t done any damage. AST, ALT & processing tests all came back in normal range. Not unexpected. The better news is that the increased dosage of Hydroxyurea I’m now on has moved the needle some more, in the right direction, on the Platelet number. That’s what’s shown on the top line in the chart above. Unfortunately, there’s also an expected reduction in WBC & RBC counts, reaffirming that Hydroxyurea is not a performance-enhancing drug. But, trust me on this, EPO is something I hope I never have to make use of, as that would be an indication of some real nasty problems.

Oh, right, since my mom’s reading this- the Dermatologist did check out the various moles & skin discolorations while I was there. Nothing scary. I’m really, really boring. Even that large and gradually-getting-larger one adjacent to my right eye? If I really cared about what it looked like, she could burn it off for me, but hey, how many people’s faces have something that looks like a map showing the gradual spread of the British Empire during colonial times?

When your Doctor finds something you weren’t looking for

Personal stuff, , , , , ,
Me and a subset of my support network (Kevin center, Becky right), having coffee at Sheri’s Java Shack last Friday after my most-recent blood test. Turned out we had reason to smile. Good thing, that!

A few weeks ago I embarked on a new journey, departing from my long-time quest to climb faster by figuring out what has been causing my breathing issues, to dealing with an anomaly in a blood test… a very-high platelet count. Out of maybe 40 different tests run on me, 37 came out beautifully, indications of someone in very good health. 2 or 3 did not, which, I’ll admit, put me into a restless state of mind. The first re-check came back worse, quickly adding a new Doctor to my portfolio, a Hematologist/Oncologist. The fear and trepidation of each incoming blood test, prior to my visit with the Hematologist, was stunning. For the first time I can remember, I felt like I had something I couldn’t fight using my wits, intelligence or strength. A really scary feeling!

New test results continued to arrive on my phone even later that same day, as if someone was deliberately trying to torture me. It made for a very rough weekend. In fact, my phone let me know of a new test result just as my daughter and I were getting ready to ride away from the shop that Friday night. I didn’t check the results until later, but as we started the ride home, we came across a down-on-his-luck guy pushing a shopping cart with his belongings, asking if we knew where a soup kitchen was. We said no (which was truthful) and moved on. 10 seconds later I turned around and headed back to him, checking on my phone to see if I could find one. Nothing open that late. I had $14 in my wallet; I took out $10 and gave it to him. I don’t know why. I just knew it was something I should do. It didn’t make me feel better, but one of my core values seemed to have become more important. All those little situations you don’t give much thought to, where what you do might make the world just a little tiny bit better, or a little tiny bit worse. Always try to choose the better.

The results of that evening’s incoming test were worse than those previous. There was this feeling, a totally irrational feeling, that the “worse” numbers on the retest might be an indication of something bad happening really fast. That feeling had no basis outside of an amateur looking at numbers without having any real context to understand them. But I resolved to handle things better, and besides, I was now on a medication (Hydroxyurea) that has a history of working very well dealing with my specific issue (too many platelets). Give it a chance. And yes, pray.

Some of the fear subsided as I began my meds, and even more so as I continued to ride well, improve even, completing the 100 mile Sequoia Century with my son in fine form. By the time two weeks had passed, I felt OK with things, I was ready for that next test. So I went in Friday morning, knowing I’d be getting those pesky emails later in the day, emails with test results that had the potential to wreck my weekend. I went with Becky and Kevin (seen in the photo) and had a truly good feeling about things, about not just the tests themselves but the future in general.

And at 2:48pm the results came in. Platelets decreased from 3x normal to just 2, with the Doctor hopeful that further improvement will be seen at the current relatively-low dose of Hydroxyurea. Thoughts of things going seriously wrong completely dispelled. Many thanks to my family (kids Becky & Kevin, wife Karen, dog Jack, cats Zack & Zoey), extended family, Chain Reaction employees and customers who have helped keep my spirits up. It’s time to settle in for what’s likely to be a very long journey (in general, scary as “bone marrow” issues are, a diagnosis of essential thrombocythemia does not typically affect lifespan but becomes a long-term managed condition).
–Mike–